Steven Tyler's Secret Hepatitis Battle

AEROSMITH frontman STEVEN TYLER has secretly been battling hepatitis C, but he is finally ready to raise awareness of the dangerous disease. Hepatitis C, a viral infection of the blood that can lead to liver disease, is often transmitted through dirty needles. Recovering drug addict Tyler announced he is slowly getting better after a year of interferon treatments, which strengthen the immune system - and he is planning to speak publicly on OPRAH WINFREY's chat show in order to warn people about the infection. He tells the New York Daily News, "It is nonexistent in my bloodstream … where it's like a complete cure. I've had hepatitis C for a long time, asymptomatic. I've been pretty quiet about this. "The band took a break about three years ago. (My doctor) said now is the time, and it's 11 months of chemotherapy (interferon) so I went on that, and it about killed me. "Hepatitis C is the one that, of all the people in this room, at least three have it and don't know it. It's the silent killer. I may go on Oprah and talk about this. I hope you don't mind me mentioning that." Tyler joins fellow celebrity hepatitis sufferers PAMELA ANDERSON, NAOMI JUDD and LARRY HAGMAN.


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Tags: Aerosmith - Steven Tyler - Oprah Winfrey - Pamela Anderson - Naomi Judd


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nep75's picture

nep75

I would love to see someone on Oprah who has Hep C speak out and make it more widely known. People need to be more aware of this. More and more people are diagnosed every day and it's just as bad as HIV, yet so little is known about it. My fiance is 4 months post 48 week treatment and is still dealing with the side effects. Thankfully he cleared, we find out end of November if it still is. Fingers crossed! The treatment can help some people and some it doesn't take. Everyone is different. But it doesn't 'cure' anyone. The treatment can create a sustained virilogical response (in remission). Hopefully one day there will be a real cure for it that isn't as bad as the disease!!Everyone who has had this please, take care and inform yourself to the fullest. Those who don't - Get Tested!!Take care,Nep75
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Sorasomary's picture

Sorasomary

CAn you gave me her site Please
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6 years 7 months ago
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kris_k's picture

kris_k

mimijill,It is sad that you are so uninformed. Of course, Steven Tyler had hepatitis c, genotype 1a and is now undetectable (no virus in his veins; i.e. cured). I, personally, know many that have had genotype 1 (a or b) and are now virus free.Many more will take interferon and ribavirin be cured. I am sorry this is not the case for you thus far, but misinforming others will not help your case or karma.I am on interferon currently, and share a common and daily dialogue with many current, previous and future users of interferon. We do win this battle, regularly. Many I speak with have. Even with its many side effects and contraindications, interferon (pegintron or pegasys) is the standard of current medical care.Yes, it is a difficult and, often, harrowing course of treatment. But, to devalue the worth of this treatment is to devalue the sacrifice of the many that fight this affliction daily. Perhaps, as a community, we might focus on encouraging people to get tested, inform our world of this disease and make some headway against a new treatment regime, rather than promoting discouragement. The person you discourage may die, when, in fact, they could have been cured were it not for the untimely reading or your words.There are fathers and sons, wives and daughters and young children dying everyday from Hep C and subsequent liver complications (cirrhosis and/or cancer). And while a significant number of these people may have contracted Hep C from at risk behaviors, at least 40% of us have no idea where we caught this disease—clearly from poor sterilization techniques and a doctor or dentist, the tattoo parlor on the corner, air vaccination guns, or blood transfusions from 1992 or earlier. To win this battle is our only hope; we fight for our families, or children, ourselves and our lives.Besides being clinically false; to say the treatment does not work, is to steal hope from those that suffer from, and fight daily, this disease. I am disheartened that someone with hepatitis C would chose to be part of the problem rather than focusing on being part of the cure.May your liver treat you well…Peace,
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DRSLETMEDOWN's picture

DRSLETMEDOWN

Here are the companies who offer free meds. For people needing Infergen the company is intermune and contact number is 1-888-696-8036 & Schering for intron A,rebetron,peg-intron,peg-intron/with rebetol or ribaviran, and their program is called a commitment to care the number is 1-800-521-7157 For people needing Roferon A,pegasys,pegasys/copegus is the company is Roche contact number is Pegassist at 1-877-734-2797 and for Epivir the contact number for them is 1-800-722-9294. Another place to find assistance is called www.needymeds.com they give all necessary info for people to get help. Meds are delivered free of charge they supply everything needed including sharps container,all needles,alcohol swabs bandaids and they give you a bag needed for when traveling to carry your meds
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cherokeequeen42's picture

cherokeequeen42

Mr. Tyler,I from Bartlesville Ok.I have been battleing hepc for 14 years.I know all the ropes.I still battle wit alcohol,as well as mental illneds.I did interferon for 13 months,in remission for 3 years.It's rough here if you are ssi,but the medical neds are met.My mother was your biggest fan,and someday I hope to at leat recieve a e-mail from you.you have been a true nsperation for me and my mother.She passed 2 years ago from lynphoma.Imised her dearly.But one of the derams I have always wanted to meet you becaus I admire your courage and strength.I have no family,and you would certainly light up my lifw and give me hope. Sincrely,Carolyn,Bartkesvilee,Ok
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chuckle1959's picture

chuckle1959

I am happy to hear that Steven is talking about the hepatitis C epidemic, I first heard that he had went though the treatment on the Lewis and Floorwax show on the The Fox radio here in Denver, CO. I am about ready to start the treatment for the second time in my life. And I felt good when I heard the broadcast on the radio. With the stigmata of the disease and what people do not know about it can make it a very deadly disease with getting the proper press needed to inform the public about its dangers. Only 1 out of every 3 people having the disease, know that they have hepatitis C.
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doggie t. dog's picture

doggie t. dog

thank god for people like steven tyler, and naomi judd comeing forward on this subject. i took the 48 week treatment also and completed it the first of oct. 2006. with positive results so far. that was one hell of a ride as you know. i guess what my question is, it has been a year since and i dont seem to be as healthy as i think i should be. i forgot to add, that i had to take nupegen twice a week to keep blood counts up along with the iterfuron and rivablavin or how ever you spell both of them. i cant find answers from anyone, as to will the rough, no energy, pain filled days go away. i will be 55 in nov. so i know age plays into it somewhat. im going to blooming, il. in nov. this year to see naomi judd, she is giveing a free talk on this subject, with a question and answer after. is there any one with these same after effects. im like the other nam vet on here, they think thats where it came from. come on peoples, lets keep getting the word out there, we need you steven. thank you for your help.
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Dragon Slayer's picture

Dragon Slayer

Hello,My name is Bobby Japhet and I found out in 1998 that I had Hepatitis C, and cirrhosis. I have been on 4 different treatments and I'm a non-responder. I'm a geno-type 1b. The doctors have told me that my only chance is a liver transplant. My last 2 treatments were a Phase 2a, and a Phase 1a clinical trial. I'm never going to quit trying to Slay The Dragon, and informing the public about the virus. I started a Hepatitis Support Group here in San Antonio, I have a web page at myspace.com/hepc_dragon_slayers orrfj@satx.rr.com., and I'm involved with 3 other online support groups. I know what may be in store for me due to me having my cirrhosis for so long, the doctors said I've had it for at least 20 years already, but until the good Lord takes me home, I will try and inform every person I can about the Hepatitis C Virus. I have all sorts of problems that have been caused by what the virus has done to my body already. I pray everyday that some group will take up the cause for the research and funding for people in need of treatments, finical care, support groups, and fund raisers for Hepatitis C Awareness so we can one day "Slay The Dragon", like Liz Taylor and her friends have done for the HIV/AIDS virus.God Bless,Bobby Japhet
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DRSLETMEDOWN's picture

DRSLETMEDOWN

DRSLETMEDOWNHep C Support Groupwww.myspace.com/hepcsupportgroup http://groups.msn.com/HEPCSUPPORTGROUPLike the well known throughout Hep "C" Circles ( Bek's Letter )I hope this will make it's way around as well.It's intent is to make people think & hopefully bring about change.I hope it ends up on the desks of lot's of politicians & physicians.First off to have been treated by the medical profession as though all my complaints were in my head for 15 years really wore me down & almost had me questioning myself but I knew my pains & ailments were real.To have had high liver counts for all those years & not one of the many doctors I had seen ever mentioned it ( WHY ? )They took away my ability to know not to drink alcohol for that time frame.Drinking those 15 years certainly did not help my situation.(WHY ? ) did I have to educate myself to the point of basically having to beg my primary to do a Hep C test.The result was not what I wanted but now it had a name.I could prove to all the nay sayers in my life including my wife that yes there was indeed something wrong.I did not just enjoy complaining about how bad I felt.All the aches & pains, joints, muscles ect.Not being able to sleep, tossing & turning all night.Stupid tests for sleep apnea, put gel in your hair & hook you up to wires & make you look like Frankenstein.Then tell you to go to sleep which you already can't do in a strange environment because your good old insurance company surely won't pay to have this done at home where it should be done.The guy giving you the test falls asleep but tells you that you slept 6 hours when you know you did not sleep at all.You ask how long he has been giving tests to be told he used to hang sheetrock for a living until a friend got him the job.You search your doctors backgrounds only to find out about all the complaints against them.Even with insurance which at this time 9/27/06 costs us over $600.00 a month for the PPO version you still are treated as OH NO here comes another insurance patient.Make appointments weeks in advance only to sit in waiting rooms hours past your appoinment time ( WHY ? )Do full waiting rooms make doctors feel important ?It takes forever to find a doctor through an insurance companies provider book & most don't speak English all that well & about the time you start to feel comfortable with the doctor you have chosen if you work for DISD the Dallas Independant School District they change insurance companies & the doctor you had is not listed with the new insurance company so you have to start all over.I have been researching Hep C for almost 5 years since I found out I have it & it is amazing to me how the information changes almost daily.Yes I understand that until 1990 there was not a test for Hep C they called it non A non B.With liver counts almost tripple the high end of normal I still can't understand why none of the doctors I had seen including two different hospitals ever mentioned it to me.I had to get my own medical records for the last 15 years to see it for myself & it was appalling.It made me sick to my stomach to think that so many so called medical professionals could be this negligent.My take is you better ask for & see for yourself what's in your medical records & keep copies.The really scary part is that I have no doubt I know more than most of the doctors I see & that is scary when you have to tell them what you want done & what the normal protocal is.I was basically told if I was not going to treat & by the way the doctor said I will treat you with or without a biopsy.That made no sense if he did not know my livers condition why would you treat other than the money you would make.I have no doubt it is more about the money than what is in the patients best interest.I was told just come back yearly & we will re check everything.I did that & this time he did no PCR, NO LIVER SONOGRAM.He said if you are not treating it really does not matter ( the numbers ).BULL I SAY ! If you don't do it then you have nothing to compare to.It's just another way of the insurance companies controlling what doctors do & don't do.Against popular belief if you talk to doctors that are not on your policy & that would see you if you could afford them they ALL tell me that a person with chronic hep c should have blood work every three to six months & a sonogram & PCR every six months.You are told depending on what you read & who you listen to that it is almost impossible to get hep c sexually.That it is more likely to happen if at all from man to woman verses woman to man.WAIT A MINUTE ! that's talking out of both sides of your mouth.If I have learned anything in my journey for information it's not to believe everything I read or that I am told regardless of the source.There is too much money to be made by too many people to get a quick fix.It used to be TREAT,TREAT,TREAT now that is changing to what I had said all along ( WHY ? ) would someone that is not really sick already put toxic stuff in their body knowing that the odds of long term ( SVR ) remission are not that good.If I were really sick already then I am sure I would give treatment a try.It's just not for everyone & needs to be well thought out.Then there is that disability thing that the goverment does not want to acknowledge so another battle to have to fight.The stigma that HEP C came from shooting IV drugs & for some it did but there are plenty of us that got it other ways & I still say sex is one of them depending on what & where you read anywhere from 5% to 15 %.Protect the people you love & have sex with that is just good sense you owe that to another human being.At the very least discuss the fact that you have hep c & let them decide if they want to have unprotected sex.This is a very sore subject for most people because they don't want to have to use protection.For those who's spouses are not infected & choose not to use protection I say you are Playing Russian roulette & good luck.My wife of 22 years in a momogamus relationship now has hep c & the same geno type as mine. We were not having any wild & kinky rough sex.Neither of us has tattoos, piercings, ever did IV drugs, had surgeries or recieved blood transfusions.I do believe that it came from unsterile practices & that could have been just about anywhere.The doctor from shots or the dentist, next time you go ask to look at all the aquarium like tubing that connects to things they put in your mouth.Trust me it's not a pretty site & it has been talked about on most major prime time TV shows BUT THEY DON'T & WON'T talk about Hep C.Even if they have the proper sterilazation equiptment who is to say after a long hard day that the person responsible to see that it gets done really does it ? there should be a back up fool proof system in place.Everyone will admit to cutting corners at work especially if you have plans.Even recently many people were infected in a hospital by careless non caring so called professionals.I saw Pamela Anderson of baywatch fame on the tonight show with Jay Lenno.I thought she was our new poster girl & gonna' get out the word.Hep C was never mentioned at all so a huge audience missed being informed by her silence.Most people know NADA, NOTHING, ZILCH about this disease & that is not gonna' change until we all make demands on our politicians, the medical profession, & the news media & demand the truth about this disease be told.Bigger than aids & spreading faster & most people do not have a clue.WHAT IS THE GOVERMENT AFRAID OF ?THE TRUTH ? IF SO WHY ?Those shots they all gave us as kids to keep from catching this & that they were made with blood products.All I have to say is this is not an IV drug user only disease as many seem to want the public to believe.If we don't unite together & make our voices heard the younger generation is doomed in my opinion.This disease can be controlled & there are people who need to treat & do it now just not everyone.This is not a disease that has a universal treatment plan that just because you have hep c this is what you do.I wish it were that easy.Educate yourself so you can make educated decisions, share what you learn & get the word out.For all those who have treated & failed & are treating again I admire your courage & I pray you become hep c free forever & I know it works for some & they stay virus free.For the rest of us I pray for better treatments with less toxic side effects & better overall long term results.I hope if nothing else this will make you think & use good judgement in however you deal with this disease.I have met some great caring & wonderful people through this journey & you know who you are.You share what you know & give others hope.We all deserve better than what we can currently get & it will take us all to bring about that change.Make your voice heard at every level.Write letters to all your elected officials, organize groups & do your part to bring about change.I did the hep A&B vaccines & highly reccomend you get yours you don't want A or B on top of C.I did the Twinrix combo it's A&B together & saves you two injections by not doing the A&B seperately.My A took my B did not. I finally got the alternative to a biopsy it's called Fibrosure & is done at any Lab Corp & does not have the risk of a biopsy since it is done with blood.( God Bless Us All )
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StarMickeyFL's picture

StarMickeyFL

The silent killer is absolutely right. I have had it for many years and it was not found until I had severe liver damage. I was diagnosed in 3/06 and am on week 13 of 48 weeks. I still have along road ahead, but watching the Access Hollywood video of Steve Tyler, which I have saved to my favorites, has given me hope again. I will repaly the video whenever I start to get down. This treatment is very tough and it plays games with yoour head so sometimes you find yourself asking "Is it worth it?" I sure hope that he does go on Oprah. It's amazing how no one seems to know anything about this disease yet more people are infected with it than HIV. My friends and I are in health care and not much is taught about it. I couldn't believe the stats when I started to read up on it. Thanks Steve for coming out with this.
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